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Cystic Fibrosis: References

US Department of health & Human Services. National Institutes of Health. National Heart, Lung, and Blood Institute. Cystic fibrosis. https://www.nhlbi.nih.gov/health-topics/cystic-fibrosis. Accessed June 2021.

Sweat test. Cystic Fibrosis Foundation. https://www.cff.org/What-is-CF/Testing/Sweat-Test/. Accessed June 2021.

Sweat chloride test. Lab Tests Online. https://labtestsonline.org/tests/sweat-chloride-test. Updated January 27, 2021. Accessed June 2021.

Lahiri T, Hempstead SE, Brady C, et al. Clinical practice guidelines from the Cystic Fibrosis Foundation for preschoolers with cystic fibrosis. Pediatrics, 2016. https://pediatrics.aappublications.org/content/pediatrics/137/4/e20151784.full.pdf. Accessed June 2021.

Breuer O, Shteyer E, Wilschanski M, et al. Hepatopulmonary syndrome in patients with cystic fibrosis and liver disease. Chest Journal. Chest. 2016;149(2):e35-e38. doi:10.1016/j.chest.2015.10.040. https://journal.chestnet.org/article/S0012-3692(15)00128-2/fulltext.

Cystic fibrosis. American Academy of Pediatrics. https://www.healthychildren.org/English/health-issues/conditions/chronic/Pages/Cystic-Fibrosis.aspx. Updated November 21, 2015. Accessed June 2021.

Yankaskas JR, Marshall BC, Sufian B, et al. Cystic fibrosis adult care: consensus conference report. Chest, 2004. 125(1 Suppl): 1s-39s. https://www.cff.org/Care/Clinical-Care-Guidelines/Age-Specific-Clinical-Care-Guidelines/Adult-Care-Clinical-Care-Guidelines/. Reviewed April 2019. Accessed June 2021.

Schwarzenberg SJ, Hempstead SE, McDonald CM, et al. Enteral tube feeding for individuals with cystic fibrosis: Cystic Fibrosis Foundation evidence-informed guidelines. J Cyst Fibros, 2016. 15(6): 724-735. https://www.cysticfibrosisjournal.com/article/S1569-1993(16)30594-X/pdf. Accessed June 2021.

Sawicki GS, Ostrenga J, Petren K, et al. Risk factors for gaps in care during transfer from pediatric to adult cystic fibrosis programs in the United States. Ann Am Thorac Soc, 2018. 15(2): 234-240.

Best practices in the management of the gastrointestinal aspects of CF. Cystic Fibrosis Foundation. https://www.cff.org/Care/Clinical-Care-Guidelines/Best-Practices-in-the-Management-of-the-Gastrointestinal-Aspects-of-CF/. Accessed June 2021.

Farrell PM, White TB, Ren CL, et al. Diagnosis of cystic fibrosis: consensus guidelines from the Cystic Fibrosis Foundation. J Pediatr, 2017. 181s: S4-S15.e1. https://scholarworks.iupui.edu/bitstream/handle/1805/14356/Farrell_2017_diagnosis.pdf?sequence=1. Accessed June 2021.

Ren CL, Morgan RL, Oermann C, et al. Use of cystic fibrosis transmembrane conductance regulator modulator therapy in patients with cystic fibrosis. Cystic Fibrosis Foundation Pulmonary Guidelines. Ann Am Thorac Soc, 2018. 15(3): 271-280.

Cystic fibrosis (CF) evidence-based nutrition practice guideline. Academy of Nutrition and Dietetics. https://www.andeal.org/topic.cfm?menu=5876&cat=5877. Accessed June 2021.

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